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Alex's Virtual Mars Landing Fundraising Party
Celebrate with us for the arrival of NASA's Perseverance Rover on Mars, which carries Alex's name, with a virtual Mars landing fundraising party! After a 12 year diagnostic odyssey, Alex was diagnosed in 2018 with an extremely rare neurological disorder caused by a mutation of the IRF2BPL gene, also known as neurodevelopmental disorder with regression, abnormal movements, loss of speech, and seizures (NEDAMSS). Our mission: To raise funds for the Center for Rare Childhood Disorders so that other cold case families can get another opportunity for a diagnosis. And for Stand by Eli for research, treatments, and therapies for the devastating rare disease IRF2BPL / NEDAMSS.

Donate to TGEN:

Donate to STAND BY ELI:

Feb 18, 2021 05:30 PM in Pacific Time (US and Canada)

Webinar is over, you cannot register now. If you have any questions, please contact Webinar host: Caroline Yiu.