Data sharing has the potential to increase scientific efficiency by maximising the availability and utility of data, and can be critical to generating knowledge during a public health emergency. But how can we share for maximum benefit and least harm, and without exacerbating existing inequalities between researchers from well-resourced and low-resourced settings? What do we need to do to ensure that data sharing policies and processes are respectful of participants and communities and what governance mechanisms need to be in place before patient data can be shared and used in health research?
The 2018 Global Forum on Bioethics in Research (GFBR) focused on the important topic of the ethics of data sharing in health research. This PHEPREN and GFBR seminar will examine the GFBR meeting conclusions in the context of the current COVID-19 research response, where the pandemic has created more tension to the issues. We will explore how research practice and policy has progressed since this topic was discussed at GFBR, and what has changed – and should change – in light of the COVID-19 pandemic.
Further details are available at https://epidemicethics.tghn.org/seminars/.