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Info Session about the Voice of the Patient Forum
Our webinar will introduce our Voice of the Patient Forum (taking place on April 21) and answer your questions about how you can get involved. The Forum is the FSHD Community’s platform to present testimony by patients and family caregivers and educate the FDA on how FSHD has impacted your life or the life of your loved ones. Your input will result in a Voice of the Patient Report that will be submitted to the FDA’s Division of Neurology Products, Office of New Drugs, for inclusion in the framework used to evaluate future FSHD therapies. Your views carry great weight with the agency when it considers whether to approve a new therapy.

We encourage everyone—patients and family members, at every stage of disease progression—to get involved. This webinar will explain all of the ways you can participate:
- Answering our surveys;
- Participating in the live webcast;
- Attending in person.

Jan 20, 2020 12:00 PM in Eastern Time (US and Canada)

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