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The future of rare diseases in Europe: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community
Welcome to the registration page for the roundtable ‘The future of rare diseases in Europe: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community’

The panel currently confirmed is the following:
- Pernille Weiss, Member of the European Parliament, EPP
- Birthe Byskov Holm, President Sjældne Diagnoser (Rare Diseases Denmark)
- Jonas Vikman, Director Government and International Affairs, LIF Sweden
- Lina Nordquist, Swedish Member of Parliament and healthcare policy spokesperson Liberalerna

Line Friis Frederiksen, journalist, biologist & experienced moderator will moderate the discussion.

Terkel Andersen, President of the EURORDIS Board; Co-founder of Rare Diseases Denmark, will deliver a keynote speech.

Organised in partnership with EUCOPE.

If you have any questions, please contact Lars Stollenwerk at lars.stollenwerk@fticonsulting.com

Sep 7, 2021 12:00 PM in Brussels

Webinar is over, you cannot register now. If you have any questions, please contact Webinar host: EUCOPE.