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Contribute to the next 10 years of Rare Disease Policy!
Register to participate in a webinar taking place on 2 May (12:00 CEST) to learn about how EURORDIS needs your support in leading a foresight study shaping the next ten years of rare disease policy in Europe.

EURORDIS has been privileged with coordinating the Rare2030 project - a foresight study to reflect on the long-term future of people living with a rare disease in Europe and propose policy recommendations to European, national and regional decision makers through 2030 and beyond. The health of 30 million people living with a rare disease in Europe should not be left to luck or chance. Rare 2030 prepares a better future for people living with a rare disease in Europe and we cannot do this work without your point of view!

Join this webinar hosted by Anna Kole, EURORDIS Public Health Policy Advisor and Giovanna Giuffrè, ISINNOVA foresight methods expert, to learn more about what a foresight study is and how you can help shape future recommendations on rare disease policy.

The webinar will highlight the first opportunity to get involved at the next EURORDIS Membership Meeting in Bucharest. During a half-day workshop, we will brainstorm the factors that most influence our future as people living with rare diseases in small groups and prioritize them together.

Read more about Rare 2030:

May 2, 2019 12:00 PM in Paris

Webinar is over, you can not register now. If you have any questions, please contact Webinar host: Davor Duboka.