COVID-19 focused platforms and registries for sharing participant-level clinical-epidemiological, OMICs, and imaging data
In the research and public health response to COVID-19, there has been a rush to share data, marked by an explosion of population- and discipline-specific registries. Data sharing platforms, which generally predate the COVID-19 pandemic, have been expanded to include different types of COVID-19-related data.
In this webinar, we present a comprehensive, living overview of COVID-19-related platforms and registries for sharing participant-level clinical-epidemiological, OMICs, and imaging data and review the interoperability of data sharing efforts and how these initiatives map to best practice for ethical, equitable, and effective data sharing and application of the FAIR Principles for managing data resources.
Chair: Phaik Yeong Cheah
Associate Professor at the University of Oxford and chair of the COVID-19 Clinical Research Coalition Data Sharing Working Group.
Lauren Maxwell, PhD, MPH
Senior Researcher at Heidelberg University's Institute for Global Health, TDR, and the WHO Department of Sexual and Reproductive Health and Research
Susanna-Assunta Sansone, PhD
Associate Director of the Oxford e-Research centre, and Associate Professor at the University of Oxford.
Fruzsina Molnar Gabor, PhD
Legal scientist and research group leader at the BioQuant Centre and the Academy of Sciences and Humanities, in Heidelberg, Germany
Former lead for Global Health Ethics at WHO, now an independent bioethics advisor to international research groups and Universities. Has a special interest in ethics of infectious disease outbreaks, new technologies and health systems research.
Leader of the Global Health and ID Research team at the Kumasi Centre for Collaborative Research (KCCR) in Ghana.
Senior advisor at the Canadian Institutes of Health Research (CIHR). Current chair of the GloPID-R Data Sharing WG.