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Call-in Webinar - Shared screen with speaker view
Ed Hirtzel
14:38
If you are experiencing trouble using a Spanish translation, could you please do the following steps for me:
Ed Hirtzel
15:39
Amy, there was an error in our previous communication, my apologies. I have sent out a new communication with the correct web ID.
Ed Hirtzel
16:36
Step 1: ensure interpretation is coming up in bottom menu. Is Spanish visible as an interpretation option and selected?
Ed Hirtzel
17:20
Okay. I am pulling up Zoom support now
Ed Hirtzel
18:22
Is translation still stalled?
Ed Hirtzel
18:39
Great, thank you Karina
Ed Hirtzel
19:09
Fernando, make sure you have the latest version of Zoom installed
Kelly Rubio
19:21
please be aware the Spanish translation is not working
Ed Hirtzel
19:34
Ah, ok, got it, back to troubleshooting
Joanna French
19:48
Can you share Nancy’s last name and role please?
Judy Mark
19:49
You need to have the latest software.
Judy Mark
20:08
It will only work on a computer.
Michelle Heid
20:39
Nancy Bargmann, Director of DDS
Kelly Rubio
20:42
I am on a computer and downloaded zoom today. its not translating
Ed Hirtzel
20:48
I am getting in the Spanish channel now and I’m verifying that translation is not going through
Ed Hirtzel
21:49
Getting in touch w/ our interpreter now & working with Zoom. Thank you so much for your patience
Kelly Rubio
21:50
I was testing it out because I am bilingual.
Kelly Rubio
22:30
thank you we have many Spanish speakers here
Judy Mark
23:37
Interpreter is going out and coming back in
Ed Hirtzel
23:47
We’re having our interpreter exit and reenter the channel, thank you so much for standing by
Ed Hirtzel
23:57
(Sorry, Judy, great minds think alike)
Joanna French
24:18
Is there someone who can be providing ASL translation as well?
Ed Hirtzel
24:30
Unfortunately, we don’t have ASL interpretation available, Joanna
Kelly Rubio
25:18
gracias por su paciencia. estan tratando de arreglar la option del traducer en Espanola
Ed Hirtzel
25:26
Sorry, Barbara, we have maxed our webinar capacity. We’re very pleased that so many people are interested in this information and we’ll definitely note that we need a bigger webinar license for next time
Veronica
25:39
ESPANOL POR FAVOR
Rachel
25:41
Speaking of creativity, I’ve found this article extremely helpful during these tough times: https://www.aubreymcgowan.com/what-would-macgyver-do-and-8-more-questions-resourceful-people-ask/
Judy Mark
26:02
We are recording this and will get the recording to everyone.
Ed Hirtzel
26:30
Yes, Carla, unfortunately the meeting is at capacity.
Judy Mark
26:51
We have over 600 people and have maxed out the line. You should conference people in by phone everyone!
Bonnie Sayers
27:43
IS there a FB group where we can all brainstorm and share our areas and what we can help like technology, blog posts, etc.
Melissa Lucero
27:48
What is the website that Judy had mentioned?
Marylin Beddawi
27:51
my 19 year old daughter lives in a carehome, now that she is not able to go to school, what other choices does she have in order to be at during the day time since now not going to school, the care home is having to keep her at home which places a hardship on them? My husband and I do have our own health issues that is why we are not having her with us. Please advice. Currently Regional Center said she is not able to go to a Day Program because she is not 22years old and only if we switch to her Medi-cal HMO she could go to a Day Program, but I do not want to jepardize her medi-cal services by switching from straight Medi-cal to Hmo medi-cal.
Judy Mark
28:07
disabilityvoicesunited.org/cv
Melissa Lucero
28:15
Thank you so much Judy.
Judy Mark
29:06
Please conference people in with your phones.
Judy Mark
29:38
All of the DDS directives are on the DDS website and on disabilityvoicesunited.org/cv
Judy Mark
29:44
DDS.ca.gov
Bonnie Sayers
31:38
I have yet to receive an email from lanterman RC, but have from Autism Society LA telling me of this, CDCAN many times daily, ARC, easter seals, IHSS - but nothing from LANTERMAN REGIONAL CENTER - even IHSS social worker called yesterday to insist I get my son cal fresh
Andy Imparato
32:00
Disability Rights California has a dedicated COVID-19 page and the ability to take intake through our website at www.disabilityrightsca.org and you can click on the box that says "short term assistance request form" if you are having a problem and would like us to help you
Andy Imparato
32:50
Our 800 number is 800 776-5746 and it is operational with 5 staff answering it while they are working from home
Jamie Rivera-Vallestero
33:05
How do you get on your mailing list?
Andy Imparato
33:08
I would say ask for help with whatever you need help with and we will try to help
Andy Imparato
33:30
it may be referring you to appropriate local resources if we can't address the issue ourselves
G7 ThinQ
35:09
I can disconnect to get the interpreter. I am Maria. Judy. we need to be sure the interpreter in connected. please
Melissa Lucero
36:35
Where can I find the common FAQs that he’s talking about?
Andy Imparato
39:14
My personal email is Andy.Imparato@disabilityrightsca.org and Lauren Giardina who oversees our intake and is on this call with me is Lauren.Giardina@disabilityrightsca.org I am the executive director and Lauren is a senior managing attorney for intake and outreach and our in-house expert on emergency preparedness and response
Nilanga
39:40
How can I be added to the NLACRC mailing list?
Ed Hirtzel
40:22
State Council Number is 833-818-9886
Michelle Heid
40:28
Go to https://nlacrc.org and click on join the mailing list.
Andrea Fuentes
41:26
Where are the FAQs, I am in the San Francisco Bay Area. Thanks for hosting I joined late (just heard about it)
Judy Mark
42:05
scdd.ca.gov
Judy Mark
42:38
The DVU website on Coronavirus is: disabilityvoicesunited.org/cv
Andrea Fuentes
42:42
thanks I just heard him say that, on the site now
G7 ThinQ
53:34
excellent interpretation
kendratully
53:34
With social distancing public health guidelines, are we anticipating trouble housing any of the remaining individuals at Porterville?
Andrea Fuentes
01:09:48
Sending you virtual hug, hope your daughter is able to hug you soon
Andy Imparato
01:09:48
http://www.gmsavt.org/ is where the Vermont plain language info on covid-19 can be found
Joy
01:11:41
My son needs hands-on help for many tasks throughout his day. If, G-d forbid, he becomes ill, his care necessitates that people touch him to help him. Any advice?
Amster
01:15:39
This week I was talking to an executive at WRC. I was discussing an increase of hours of home Behavior Intervention during this time. (This was before the agency closed.) She basically said that since "the Regional centers are required by law to provide services in the most cost-effective way possible." Even increasing services by 5 hours per RC client would bankrupt WRC. The agency is closed now, but regional centers can't get away with denying servcies based on "cost-effective way possible."
Judy Mark
01:18:17
Please place your questions in the Q&A section. It will be much easier for me to find as the moderator.
Kelly Rubio
01:19:09
I would like to bring to attention that congress has proposed to waive the idea act. I urge everyone to reach out to your senators (Harris and Feinstein) let them know we dont want our civil rights waived.
Kelly Rubio
01:20:22
please visit copaa.org for updates on this issue
Jacquelyn Williams Brooks
01:25:23
Can the presentation be put in the chat please
Judy Mark
01:25:42
It isn’t possible because Scott is sharing the screen.
Judy Mark
01:26:02
We will email it out to everyone and put it up on our website as soon as we receive it.
Natalie
01:26:22
Avenues can try to share through the Avenues Supported Living Service Facebook page or with Judy Mark
G7 ThinQ
01:27:12
can we have this translate in Spanish
Judy Mark
01:27:23
Yes it will be translated into Spanish as well.
Judy Mark
01:31:16
Please put your questions into Q&A.
Judy Mark
01:34:50
We are only discussing regional center services today, not education. We know how incredibly important education is but we don’t have experts on this webinar on that today. So sorry.
Ed Hirtzel
01:38:28
For those who wanted to sign up for the Disability Voices United mailing list, here is the link: https://lp.constantcontactpages.com/su/Lr0QFmi
Ed Hirtzel
01:39:45
Please ask questions through the Q&A so that we are able to get them answered for you!
Ed Hirtzel
01:40:22
The Q&A icon is located in the bottom of your Zoom window, next to the “participants” icon. It looks like two gray chat bubbles.
Ed Hirtzel
01:47:12
Nilanga, I took note of your question earlier and sent to Judy (:
Jolie
01:48:28
Dr. Kripke, can you kindly send out an email stating your simple and helpful description of how the virus is and is NOT spread? This would be helpful to distribute.
Bonnie Sayers
01:48:36
We did not RSVP for this zoom webinar, so how would we get a recording?
G7 ThinQ
01:48:55
can families have a 3 or 4 weeks training on behavior management for parents ? via video conferences
Ed Hirtzel
01:49:02
Bonnie, we’ll post the recording on our webpage and share it on our social media if possible. I will post links to those sites now:
Ed Hirtzel
01:49:21
http://www.disabilityvoicesunited.org/1/ - DVU website
Ed Hirtzel
01:49:40
https://www.facebook.com/disabilityvoicesunited/ - DVU Facebook
kellykulzer-reyes
01:49:49
I would love to share this video with my Disability Services students. Please let me know if that is possible.
Bonnie Sayers
01:49:50
Thanks Ed - I follow on twitter
Ed Hirtzel
01:50:06
http://disabilityvoicesunited.org/cv/ - DVU resource on coronavirus; we will have this translated into Spanish soon
kellykulzer-reyes
01:50:34
I see your responses to Bonnie. Thank you!
Ed Hirtzel
01:51:17
Of course, Kelly! (I will shortly be asking you about that captioning site again (: )
kellykulzer-reyes
01:51:56
Zoom auto captions if the meeting is recorded to the Cloud. Fingers crossed this is.
Ed Hirtzel
01:52:01
It is!
Kristen Prater
01:53:16
Re Respite: Is it possible that the staff members no longer want to work.
Michelle Heid
01:53:58
It might be a business by business decision. I would imagine that many providers are worried about exposing their employees and then being liable. It also might be respite workers who do not want to go to work.
Bonnie Sayers
01:54:01
autism society LA sent out an email yesterday that had link for this zoom webinar and another one tonight at 6:30 that had to RSVP - called Resources for the new Reality - coronavirus in the special needs community with Easter seals, SCDD, ASLA IRC - here is link - https://zoom.us/webinar/WN_OrLkTk9QPKBVeWuDJm4wXw
G7 ThinQ
01:54:19
Judy. with all my respect to all. but there are homes that are in a terrible conditions. I think that many respite CO are concern about their safety.
Cherisse Wong Sherin
01:54:33
Our agency told our staff they cannot provide services as prevention measures - protecting out employees and client families until the pandemic reaches a level of worth minimal health risk
Kristen Prater
01:55:30
We were told by our liability insurance provider that because an employee could not prove where they contract Covid-19, insurance companies will pay out on any claims.
G7 ThinQ
01:56:39
families have to change their ways they keep their home. Cleanliness and safety are pivotal. Every one needs to cooperate.
kellykulzer-reyes
01:57:07
Thank you, Aaron
kellykulzer-reyes
01:57:36
Thank you, Leinani.
kellykulzer-reyes
01:57:51
Thank you, Andy.
kellykulzer-reyes
01:57:58
Thank you Scott.
kellykulzer-reyes
01:58:05
Thank you Dr Kripke.
nancyniebrugge
01:58:38
Yes, we have staff who do not want to go into home, even though we have given permission to do so.
kellykulzer-reyes
01:58:42
Thank you, Tim, Judy, Ed, and all of DVU!
trudycallahan
01:58:45
Providers were waiting for directives and did not want to put their consumers or their staff in harms way.
Jolie
01:59:46
All my DSPs are working like the heroes they are. Taking all precautions, hanging in like champions.
trudycallahan
02:01:09
If there are not enough COVID-19 tests or basic safety equipment for hospitals, how can non-essential services be safely provided in-person?
Bonnie Sayers
02:03:38
the link for the webinar at 6:30 that needs a RSVP is at Autism Society of Los Angeles - on Facebook - I did type out the link earlier
Ricki
02:04:04
Non Essential is dependent on the situation. If a family has a highly behavioral or challenging family member who has respite, having that service may become a health and safety issue.
kellykulzer-reyes
02:05:07
On the DS Task Force meeting this week, I suggested using SDP rules to meet needs that are emergent with this unprecedented emergency.
michellesmith
02:05:13
I must put in a plug for Self-determination… One of my children is in SD and the transition to this season has gone without a hiccup. There are more layers to negotiate with the other agencies.
V Berrey
02:05:17
Not sure about Regional Centers, but school districts are required to provide assistive technology to students at home if needed to access their education
G7 ThinQ
02:06:42
Con todo respecro. Las familias tienen que cambiar sus formas de conservar su hogar. La limpieza y la seguridad son fundamentales. Todos necesitan cooperar. Sobre todo si los ayudantes van darle servicios su hijo(a). Gracias
Jolie
02:08:11
I believe that, when giving an example of need, Leinani mentioned 100 extra care hours, etc. Of course it will be hundreds of hours of extra SLS due to the DP closures. It will be hundreds of hours of overtime not covered by current SLS rates. The most recent bulletin from the DDS seems to imply coverage for those hours under "Supplemental Staffing for Residential Providers." I am hoping this is the case.
kellykulzer-reyes
02:09:36
Thank you everyone!
Jolie
02:13:04
But we have to have those masks on hand immediately in order to continue care. It is not a stockpile, it is vital.
Jolie
02:14:23
The moment a client would sneeze the caregivers will not feel safe staying. In this case we need an exception to the mask rule. Our clients cannot be left alone. They cannot self-isolate.
kristinjacobson
02:14:39
BHT is essential and is not being treated as such. If respite is called out as essential BHT needs to be to be explicitly listed as essential, just like respite, DDS probably isn’t doing it because it should be obvious, but it clearly is not. Health plans and medi-cal are telling providers the HIPPA and Telehealth restrictions flexibility applies to everything except BHT.
Jolie
02:16:11
These masks should be distributed to the most fragile, not the most ill. They can be distributed to the admin offices and doled out with written agreements and sanctions.
Bonnie Sayers
02:18:44
I want a thermometer two adults sons on the spectrum with OCD and nothing at any of the stores. Luckily the day program is checking temps via forehead thermometer upon entry so I know my son has normal temps, but over a month before in stock on amazon and triple the price at over $100 for a normal $15-40 product. I do have blood pressure monitor and a pulse one. Any tips on where to get a thermometer from others on here?
kristinjacobson
02:20:33
BHT is a health care service and in order to protect safety and meet behavioral goals cannot stay 6 feet away. Providers need to get the word from state level that the services are essential and explain to them why they don’t need masks and protective gear to still provide direct services. They are worried about laying off staff to avoid paying extra sick leave they can’t afford. That creates a much bigger crisis that lasts for years. No BHT services automatically means more aggression, more ER visits etc. and more spread of the virus
kristinjacobson
02:21:45
How are you defining fever? It varies by age, right?
Bonnie Sayers
02:25:56
I dont think anyone has mentioned seizures - my son started having them as an adult, one in 2017, one in 2018 and so far that was it. Not sure calling 911 and going to ER if that happens would be suitable as the CT scans would be very busy
Judy Mark
02:32:20
Brilliant idea, Christina!
Bonnie Sayers
02:34:54
we can do this in FB group where we can see the city everyone lives in and work on it ourselves to get it moving.
Bonnie Sayers
02:35:49
Also good to put all the emergency info on the phone like blood type and emergency contact, medical info taped to refrigerator
Judy Mark
02:37:17
We will be releasing the recording of this call.
G7 ThinQ
02:39:04
Judy. Can we talk to supermarkets to ofrecer. special shopping time for people with Disability . May be 8 am to 10 am ?
Judy Mark
02:39:13
We paid hundreds of dollars to have this webinar. We had almost 700 people on at one point. We are a poor tiny non-profit, so this is the best we can do at this point. We will do this again soon.
Bonnie Sayers
02:40:23
There are platforms that are providing free services during this time. I will do some research to see how to not pay for this Zoom
Ed Hirtzel
02:40:51
https://www.npr.org/sections/coronavirus-live-updates/2020/03/19/818488098/supermarkets-add-senior-hours-for-vulnerable-shoppers
Ed Hirtzel
02:41:04
If you read the article, it talks about how immunocompromised and other vulnerable parties are included.
kristinjacobson
02:41:28
Repeating for whole group. Zoom has offered free unlimited services for every k-12 district in the entire country as of last Friday. We need to ask them to do that for the DD community nationwide.
Judy Mark
02:42:27
Zoom is not offering free webinars at this size. FYI.
nancyniebrugge
02:44:26
I believe it’s now illegal to evict someone during this crisis.
Bonnie Sayers
02:45:34
Can you do a livestream on you tube - that would be free? I was on one for six weeks with Doctor Amen every tuesday night and there was over 2K each night
michellesmith
02:46:11
As a physical therapist, it is imperative that people exercise at the level they are able.
Bonnie Sayers
02:46:21
A FB group and then do various FB lives for different topics. it is free
Judy Mark
02:46:52
These are all GREAT suggestions. Thank you and we will look into them all.
kellykulzer-reyes
02:47:01
Those free resources do not create captioning.
Bonnie Sayers
02:47:22
streamyard does captions
Ed Hirtzel
02:47:56
I have captured the unanswered questions.
Megan Mendes
02:48:11
Thank you to DVU, Judy for your hard work, and to all the panelists for sharing your expertise with the community
G7 ThinQ
02:48:23
Judy. I can help with OC Supermarkets to open hours for our families. Let work together to help every one .
michellesmith
02:49:04
I am sending this info to our school district, so keep up the good work. You are all so awesome
Bonnie Sayers
02:49:06
Periscope, Linkedin,
Bonnie Sayers
02:49:34
Thank you all
kristinjacobson
02:49:40
Thank you to all, especially Judy. This was AMAZING
kristinjacobson
02:49:59
Actually, Especially to each one of you
G7 ThinQ
02:50:22
judy. I can donate my time as interpreter as well. if you needed
trudycallahan
02:50:29
Thank you everyone!
michellesmith
02:50:37
Tim: your input was especially helpful
Bonnie Sayers
02:50:44
I can help with a FB group
kellykulzer-reyes
02:51:03
You all rock!
Ed Hirtzel
02:51:38
Thank you x1000000000 especially to Lorna
G7 ThinQ
02:51:40
yessssssss thanks to all. SI WE CAN
MaiaPawooskar
02:51:58
Thank you