Call-in Webinar - Shared screen with speaker view
If you are experiencing trouble using a Spanish translation, could you please do the following steps for me:
Amy, there was an error in our previous communication, my apologies. I have sent out a new communication with the correct web ID.
Step 1: ensure interpretation is coming up in bottom menu. Is Spanish visible as an interpretation option and selected?
Okay. I am pulling up Zoom support now
Is translation still stalled?
Great, thank you Karina
Fernando, make sure you have the latest version of Zoom installed
please be aware the Spanish translation is not working
Ah, ok, got it, back to troubleshooting
Can you share Nancy’s last name and role please?
You need to have the latest software.
It will only work on a computer.
Nancy Bargmann, Director of DDS
I am on a computer and downloaded zoom today. its not translating
I am getting in the Spanish channel now and I’m verifying that translation is not going through
Getting in touch w/ our interpreter now & working with Zoom. Thank you so much for your patience
I was testing it out because I am bilingual.
thank you we have many Spanish speakers here
Interpreter is going out and coming back in
We’re having our interpreter exit and reenter the channel, thank you so much for standing by
(Sorry, Judy, great minds think alike)
Is there someone who can be providing ASL translation as well?
Unfortunately, we don’t have ASL interpretation available, Joanna
gracias por su paciencia. estan tratando de arreglar la option del traducer en Espanola
Sorry, Barbara, we have maxed our webinar capacity. We’re very pleased that so many people are interested in this information and we’ll definitely note that we need a bigger webinar license for next time
ESPANOL POR FAVOR
Speaking of creativity, I’ve found this article extremely helpful during these tough times: https://www.aubreymcgowan.com/what-would-macgyver-do-and-8-more-questions-resourceful-people-ask/
We are recording this and will get the recording to everyone.
Yes, Carla, unfortunately the meeting is at capacity.
We have over 600 people and have maxed out the line. You should conference people in by phone everyone!
IS there a FB group where we can all brainstorm and share our areas and what we can help like technology, blog posts, etc.
What is the website that Judy had mentioned?
my 19 year old daughter lives in a carehome, now that she is not able to go to school, what other choices does she have in order to be at during the day time since now not going to school, the care home is having to keep her at home which places a hardship on them? My husband and I do have our own health issues that is why we are not having her with us. Please advice. Currently Regional Center said she is not able to go to a Day Program because she is not 22years old and only if we switch to her Medi-cal HMO she could go to a Day Program, but I do not want to jepardize her medi-cal services by switching from straight Medi-cal to Hmo medi-cal.
Thank you so much Judy.
Please conference people in with your phones.
All of the DDS directives are on the DDS website and on disabilityvoicesunited.org/cv
I have yet to receive an email from lanterman RC, but have from Autism Society LA telling me of this, CDCAN many times daily, ARC, easter seals, IHSS - but nothing from LANTERMAN REGIONAL CENTER - even IHSS social worker called yesterday to insist I get my son cal fresh
Disability Rights California has a dedicated COVID-19 page and the ability to take intake through our website at www.disabilityrightsca.org and you can click on the box that says "short term assistance request form" if you are having a problem and would like us to help you
Our 800 number is 800 776-5746 and it is operational with 5 staff answering it while they are working from home
How do you get on your mailing list?
I would say ask for help with whatever you need help with and we will try to help
it may be referring you to appropriate local resources if we can't address the issue ourselves
I can disconnect to get the interpreter. I am Maria. Judy. we need to be sure the interpreter in connected. please
Where can I find the common FAQs that he’s talking about?
My personal email is Andy.Imparato@disabilityrightsca.org and Lauren Giardina who oversees our intake and is on this call with me is Lauren.Giardina@disabilityrightsca.org I am the executive director and Lauren is a senior managing attorney for intake and outreach and our in-house expert on emergency preparedness and response
How can I be added to the NLACRC mailing list?
State Council Number is 833-818-9886
Go to https://nlacrc.org and click on join the mailing list.
Where are the FAQs, I am in the San Francisco Bay Area. Thanks for hosting I joined late (just heard about it)
The DVU website on Coronavirus is: disabilityvoicesunited.org/cv
thanks I just heard him say that, on the site now
With social distancing public health guidelines, are we anticipating trouble housing any of the remaining individuals at Porterville?
Sending you virtual hug, hope your daughter is able to hug you soon
http://www.gmsavt.org/ is where the Vermont plain language info on covid-19 can be found
My son needs hands-on help for many tasks throughout his day. If, G-d forbid, he becomes ill, his care necessitates that people touch him to help him. Any advice?
This week I was talking to an executive at WRC. I was discussing an increase of hours of home Behavior Intervention during this time. (This was before the agency closed.) She basically said that since "the Regional centers are required by law to provide services in the most cost-effective way possible." Even increasing services by 5 hours per RC client would bankrupt WRC. The agency is closed now, but regional centers can't get away with denying servcies based on "cost-effective way possible."
Please place your questions in the Q&A section. It will be much easier for me to find as the moderator.
I would like to bring to attention that congress has proposed to waive the idea act. I urge everyone to reach out to your senators (Harris and Feinstein) let them know we dont want our civil rights waived.
please visit copaa.org for updates on this issue
Jacquelyn Williams Brooks
Can the presentation be put in the chat please
It isn’t possible because Scott is sharing the screen.
We will email it out to everyone and put it up on our website as soon as we receive it.
Avenues can try to share through the Avenues Supported Living Service Facebook page or with Judy Mark
can we have this translate in Spanish
Yes it will be translated into Spanish as well.
Please put your questions into Q&A.
We are only discussing regional center services today, not education. We know how incredibly important education is but we don’t have experts on this webinar on that today. So sorry.
For those who wanted to sign up for the Disability Voices United mailing list, here is the link: https://lp.constantcontactpages.com/su/Lr0QFmi
Please ask questions through the Q&A so that we are able to get them answered for you!
The Q&A icon is located in the bottom of your Zoom window, next to the “participants” icon. It looks like two gray chat bubbles.
Nilanga, I took note of your question earlier and sent to Judy (:
Dr. Kripke, can you kindly send out an email stating your simple and helpful description of how the virus is and is NOT spread? This would be helpful to distribute.
We did not RSVP for this zoom webinar, so how would we get a recording?
can families have a 3 or 4 weeks training on behavior management for parents ? via video conferences
Bonnie, we’ll post the recording on our webpage and share it on our social media if possible. I will post links to those sites now:
http://www.disabilityvoicesunited.org/1/ - DVU website
https://www.facebook.com/disabilityvoicesunited/ - DVU Facebook
I would love to share this video with my Disability Services students. Please let me know if that is possible.
Thanks Ed - I follow on twitter
http://disabilityvoicesunited.org/cv/ - DVU resource on coronavirus; we will have this translated into Spanish soon
I see your responses to Bonnie. Thank you!
Of course, Kelly! (I will shortly be asking you about that captioning site again (: )
Zoom auto captions if the meeting is recorded to the Cloud. Fingers crossed this is.
Re Respite: Is it possible that the staff members no longer want to work.
It might be a business by business decision. I would imagine that many providers are worried about exposing their employees and then being liable. It also might be respite workers who do not want to go to work.
autism society LA sent out an email yesterday that had link for this zoom webinar and another one tonight at 6:30 that had to RSVP - called Resources for the new Reality - coronavirus in the special needs community with Easter seals, SCDD, ASLA IRC - here is link - https://zoom.us/webinar/WN_OrLkTk9QPKBVeWuDJm4wXw
Judy. with all my respect to all. but there are homes that are in a terrible conditions. I think that many respite CO are concern about their safety.
Cherisse Wong Sherin
Our agency told our staff they cannot provide services as prevention measures - protecting out employees and client families until the pandemic reaches a level of worth minimal health risk
We were told by our liability insurance provider that because an employee could not prove where they contract Covid-19, insurance companies will pay out on any claims.
families have to change their ways they keep their home. Cleanliness and safety are pivotal. Every one needs to cooperate.
Thank you, Aaron
Thank you, Leinani.
Thank you, Andy.
Thank you Scott.
Thank you Dr Kripke.
Yes, we have staff who do not want to go into home, even though we have given permission to do so.
Thank you, Tim, Judy, Ed, and all of DVU!
Providers were waiting for directives and did not want to put their consumers or their staff in harms way.
All my DSPs are working like the heroes they are. Taking all precautions, hanging in like champions.
If there are not enough COVID-19 tests or basic safety equipment for hospitals, how can non-essential services be safely provided in-person?
the link for the webinar at 6:30 that needs a RSVP is at Autism Society of Los Angeles - on Facebook - I did type out the link earlier
Non Essential is dependent on the situation. If a family has a highly behavioral or challenging family member who has respite, having that service may become a health and safety issue.
On the DS Task Force meeting this week, I suggested using SDP rules to meet needs that are emergent with this unprecedented emergency.
I must put in a plug for Self-determination… One of my children is in SD and the transition to this season has gone without a hiccup. There are more layers to negotiate with the other agencies.
Not sure about Regional Centers, but school districts are required to provide assistive technology to students at home if needed to access their education
Con todo respecro. Las familias tienen que cambiar sus formas de conservar su hogar. La limpieza y la seguridad son fundamentales. Todos necesitan cooperar. Sobre todo si los ayudantes van darle servicios su hijo(a). Gracias
I believe that, when giving an example of need, Leinani mentioned 100 extra care hours, etc. Of course it will be hundreds of hours of extra SLS due to the DP closures. It will be hundreds of hours of overtime not covered by current SLS rates. The most recent bulletin from the DDS seems to imply coverage for those hours under "Supplemental Staffing for Residential Providers." I am hoping this is the case.
Thank you everyone!
But we have to have those masks on hand immediately in order to continue care. It is not a stockpile, it is vital.
The moment a client would sneeze the caregivers will not feel safe staying. In this case we need an exception to the mask rule. Our clients cannot be left alone. They cannot self-isolate.
BHT is essential and is not being treated as such. If respite is called out as essential BHT needs to be to be explicitly listed as essential, just like respite, DDS probably isn’t doing it because it should be obvious, but it clearly is not. Health plans and medi-cal are telling providers the HIPPA and Telehealth restrictions flexibility applies to everything except BHT.
These masks should be distributed to the most fragile, not the most ill. They can be distributed to the admin offices and doled out with written agreements and sanctions.
I want a thermometer two adults sons on the spectrum with OCD and nothing at any of the stores. Luckily the day program is checking temps via forehead thermometer upon entry so I know my son has normal temps, but over a month before in stock on amazon and triple the price at over $100 for a normal $15-40 product. I do have blood pressure monitor and a pulse one. Any tips on where to get a thermometer from others on here?
BHT is a health care service and in order to protect safety and meet behavioral goals cannot stay 6 feet away. Providers need to get the word from state level that the services are essential and explain to them why they don’t need masks and protective gear to still provide direct services. They are worried about laying off staff to avoid paying extra sick leave they can’t afford. That creates a much bigger crisis that lasts for years. No BHT services automatically means more aggression, more ER visits etc. and more spread of the virus
How are you defining fever? It varies by age, right?
I dont think anyone has mentioned seizures - my son started having them as an adult, one in 2017, one in 2018 and so far that was it. Not sure calling 911 and going to ER if that happens would be suitable as the CT scans would be very busy
Brilliant idea, Christina!
we can do this in FB group where we can see the city everyone lives in and work on it ourselves to get it moving.
Also good to put all the emergency info on the phone like blood type and emergency contact, medical info taped to refrigerator
We will be releasing the recording of this call.
Judy. Can we talk to supermarkets to ofrecer. special shopping time for people with Disability . May be 8 am to 10 am ?
We paid hundreds of dollars to have this webinar. We had almost 700 people on at one point. We are a poor tiny non-profit, so this is the best we can do at this point. We will do this again soon.
There are platforms that are providing free services during this time. I will do some research to see how to not pay for this Zoom
If you read the article, it talks about how immunocompromised and other vulnerable parties are included.
Repeating for whole group. Zoom has offered free unlimited services for every k-12 district in the entire country as of last Friday. We need to ask them to do that for the DD community nationwide.
Zoom is not offering free webinars at this size. FYI.
I believe it’s now illegal to evict someone during this crisis.
Can you do a livestream on you tube - that would be free? I was on one for six weeks with Doctor Amen every tuesday night and there was over 2K each night
As a physical therapist, it is imperative that people exercise at the level they are able.
A FB group and then do various FB lives for different topics. it is free
These are all GREAT suggestions. Thank you and we will look into them all.
Those free resources do not create captioning.
streamyard does captions
I have captured the unanswered questions.
Thank you to DVU, Judy for your hard work, and to all the panelists for sharing your expertise with the community
Judy. I can help with OC Supermarkets to open hours for our families. Let work together to help every one .
I am sending this info to our school district, so keep up the good work. You are all so awesome
Thank you all
Thank you to all, especially Judy. This was AMAZING
Actually, Especially to each one of you
judy. I can donate my time as interpreter as well. if you needed
Thank you everyone!
Tim: your input was especially helpful
I can help with a FB group
You all rock!
Thank you x1000000000 especially to Lorna
yessssssss thanks to all. SI WE CAN