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Global Seminar Series: Child and Neurodevelopmental disorders care during the COVID-19 crisis: The cases of Boston and Florence - Shared screen with speaker view
Bronwyn Hemsley
Please post a link of the report just mentioned thank you
Kenneth Mort
A copy of the slides would be very helpful
Luis Salvador
TO MARCO: Have you found changes in behavioral disorders in persons with ID related to the lockdown? are there differences in those living at home and those living in residences? how have you managed medication (eg clozapine)?
Simon Stafrace
TO MARCO: Did you observe difficulties in maintaining care due to staff avoidance or staff illness in residential facilities?
Marita Linkson
We will post links to the report mentioned by Marco, and provide copies of slides on our website at ANU… in next day or so https://bit.ly/34PGLjC - or you can contact me at marita.linkson@anu.edu.au
What are the threshold criteria for in-person or home visit clinical encounters during C19 pandemic? Alan.
Luis Salvador
KERIM: You mentioned ethics concerns in the US. Has there been a restriction to access to healthcare for persons with ID (eg ICU/respirators available to severe and profound persons with ID infected with COVID infection ?
KERIM: Following on Luis query what about inform consent for those needing ventilation and other procedures for COVID treatment.
Luis Salvador
To KENNETH: How has COVID19 impacted on the FLOURISH and current developments of the MH care system in NY?
Marco Bertelli
Marita Linkson
Purity Goj
The book mentioned by Dr Moore: https://www.unicef.org/coronavirus/my-hero-you
Bronwyn Hemsley
Is there a repository of examples of the Social Stories and the Visual Supports / Augmentative and Alternative Communication systems designed in Italy as these are needed worldwide and can be shared across from @WeSpeechies which I administer to distribute. Thank you
Lydia Najlepszy
It would be great to have an increase in mental health service providers in Australia, especially Queensland, able to be accessed for young people who experience autism or ID and also live with high levels of anxiety and /or depression. How can that be progressed?
Gwynnyth Llewellyn
Please see https://collaborating4inclusion.org/ for a practical planning guide developed by our researchers with Queensland Government - at our WHO Collaborating Centre we are now adapting this for people with disability in the Pacific countries. There will be one for individuals and one for families. The biggest issue is reaching out to children and adults with disability who are socially isolated or hidden in the community
Lydia Najlepszy
many of our school based Guidance Officers report back the difficulty families are facing in accessing services, many who say they don't have staff trained in working with children or young people experiencing ID/Autism and MH concerns. Has been an issue for many years
Bronwyn Hemsley
What is known about the gap in access of people with disability to the things that are helping other people in the community now (to access health and therapy services, and education), they need assistance often to access the internet and use of computer equipment is often less than in the general community.
Bronwyn Hemsley
With hospitals limiting visitors, and people with disability often relying on family members when in the hospital setting, what is the experience of people with disability in hospital in relation to presence of support people or being alone and also nurses not necessarily knowing how to communicate with them - we know there is a high reliance on paid and unpaid carers in the hospital setting usually.
Bronwyn Hemsley
Thank you for the presentations and any further information by email.
Marita Linkson
The resources mentioned (including the paper on advice re ID and ASD) have just been tweeted - follow us @CMHR_ANU
Steve Appleton
Thanks everyone