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Getting Real: Extended Family Members Share Their Story - Shared screen with speaker view
Tina Falcigno
20:15
Hi Everyone. I’m Tina Falcigno from Thunder Bay, Ontario Canada. My daughter has CHARGE.
Suzanne Chen
36:00
love the then and now list!
Karen Kreuter
01:00:26
good point, we constantly have to applaud achievements no matter how small and its tough when so many of our friends don't understand the accomplishment of he swallowed food , he laughed.
Suzanne Chen
01:06:43
Joy, you ARE my mom! She did the same thing whenever we were in the hospital! (in the chapel!)
Lorie Brew
01:08:16
I wondered how your friendships evolved. Thanks for sharing that...
Tabatha Morin
01:10:03
I am a recent graduate deafblind intervenor, would you both be able to share one tip for a new staff member going into the home with a family who has a child/grandchild with CHARGE?
Tabatha Morin
01:11:45
Ontario
Tabatha Morin
01:11:49
:(
Suzanne Chen
01:17:13
https://www.chargesyndrome.org/for-families/conferences/
Lorie Brew
01:17:35
Kudos! Thank you.
Tabatha Morin
01:17:39
Thank you so so much!
Suzanne Chen
01:17:49
awesome presentations!