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Road to Resources for your Twice Exceptional Child - Shared screen with speaker view
Callie Turk
25:31
Our presentations this Saturday are for the PAUSD Family Leadership Summit. You can get all the details and register for all the sessions at this link: https://www.pausdfamilies.org/family-leadership-summit-2021/building-future-leaders
Callie Turk
26:03
I should have mentioned that one of our co-presenters for this Saturday’s Neurodivergence through the Female Lens is on the Zoom tonight - Abby Kirigin!
Anne
40:56
Just a note: The student insurance for the University of California (and maybe CSU”s?) pays for ed psych. I wonder if that would be available to high school students taking classes?
Anne
41:38
We never did that because it requires a referral and it seemed really urgent to get him assessed before he started.
Sharon Barkan
41:58
I just listened to a webinar today about assessment ... from the Association of Educational Therapists - would love to share later.
Sharon Barkan
42:34
The purpose of private assessment and school assessment is totally different.
Sharon Barkan
43:59
One is about understanding how the child's brain works and ow to use strengths to support challenges. Schools' assessment is about qualifying for services - yes or no, and if yes, how much and what.
Callie Turk
44:38
Great points, Sharon! Looking forward to hearing more about the session you attended later tonight. Thanks for being willing to share your insights!
Callie Turk
45:12
FYI - this presentation is being recorded and will include the slides and chat. We will post that in the next few days.
Sharon Barkan
46:44
So often, the gift masks the disability, and the disability masks the gift.
Anne
55:26
If you’ve done a private assessment, what rights do 2e children have in public schools?
Callie Turk
57:44
Carmen is so right - many kids with different learning differences have social challenges. I’m reading a book now about a 2e girl who had undiagnosed dyscalculia until the end of 7th grade and she had extreme social anxiety because she was working so hard to hide what she perceived as her personal failures.
EJ
58:14
I feel that the perfectionism is so common among 2e children
Yael Valek
58:34
+1 for perfectionism, and consequent low self-esteem
EJ
58:41
and anxiety!
Callie Turk
58:45
@Anne, learning more about the rights of 2e children in public schools is something we’d like to dig into more. We had a wonderful special ed lawyer speak to our group a couple of years ago. I have on my desk a book called “Educating Twice-Exceptional Students in Compliance With IDEA and Section 504” that I want to read and could summarize on our email group, perhaps?
Anne
59:08
Yes about the perfectionism and anxiety!
EJ
59:13
@Callie, that’d be much appreciated, thanks in advance!
Callie Turk
59:46
@EJ - I’ll add it to the list! May be later this summer before I dig into it...
Yael Valek
01:00:20
@anne I have IEPs for both of my 2e kids in public, have to show their challenges impair their access to education which is challenging when they have good grades/high test scores but it can be done, or at least a 504 accommodations such as reducing work when mastery is shown, different ways to show mastery, etc
Yael Valek
01:04:31
You can check out the recording from this presentation we had as well: https://www.reelpaloalto.org/post/2e-iep-504-support-with-lamborn-advocacy
Callie Turk
01:14:20
This is what I love about Mid-Peninsula High School - accommodations are often just baked into the culture
J H
01:24:47
what are the resources for people with more time than money?
Callie Turk
01:24:59
If you joined late, we want to be sure everyone knows REEL is doing two presentation this Saturday morning for the PAUSD Family Leadership Summit. At 10 a.m. we’re presenting “Neurodivergence through the Female Lens” and at 11 a.m. we’re presenting “Intro to the 2e Learner”. It’s free and all are welcome! You can get all the details and register for all the sessions at this link: https://www.pausdfamilies.org/family-leadership-summit-2021/building-future-leaders
I should have mentioned that one of our co-presenters for this Saturday’s Neurodivergence through the Female Lens is on the Zoom tonight - Abby Kirigin!
Anne
01:25:10
What are the resources for people who have neither time nor money...
J H
01:26:11
yes this is the biggest question
J H
01:26:46
all of the things mentioned are very expensive especially in this area
Anne
01:26:50
Carmen are you local in Palo Alto
Carmen
01:27:00
Yes! We're local
Carmen
01:27:04
Menlo/RWC
Sharon Barkan
01:27:19
Parents Helping Parents
Sharon Barkan
01:27:24
Understood.org
Carmen
01:27:37
Bright & Quirky
Carmen
01:27:57
Tilt Parenting
Sharon Barkan
01:27:57
Join relevant FB groups
Julio
01:28:08
In your experience, do traditional private schools tend to shy away from children who have multiple challenges they are working through ADHD & SPD, for example)
Yael Valek
01:28:12
https://groups.google.com/forum/#!forum/reel-2e/join
Callie Turk
01:28:39
https://www.php.com/parents-of-neurodiverse-college-career-young-adults-pncc-support-group/
Carmen
01:28:49
CHC Support Groups
Callie Turk
01:29:08
This is the link to join the REEL Google Group: https://groups.google.com/forum/#!forum/reel-2e/join
J H
01:29:26
great resources for commisserating but not necessarily offer tangible services
Yael Valek
01:29:41
PHP or CHC support groups
Yael Valek
01:30:08
We also host Q&A parent support periodically
Carmen
01:32:55
evolibri.com for social skills of 14+ kids
Anne
01:33:39
He is signed up for accommodations and they are wonderful, but the trouble is that they are geared to kids who had help all along. For example, they expect self advocacy when my child only has experience hiding his LD, and writing to get help is really hard (especially when classes take him so much more time).
Kristina
01:33:53
Could you please list the assessors that specialize in finding 2E kids challenges and able to explain them in depth. My kid completed IEE and we still don't have all the answers.
Yael Valek
01:35:02
We know of a free support group in Walnut Creek that helps people who qualify (ASD can qualify for example even if 2e) “The 5 Pillars of ASD Support Services—Optimizing Services for Success” (2020), where I recount our group’s collective experience applying for and using public services. We have come to believe that every family should at least consider applying for the various public services (SSI, DOR, Regional Center) and should seriously consider having and ABLE account and a Special Needs Trust.
Yael Valek
01:35:54
Qualify for state support services like paying for high school or college, living skills coaches, and internship stipends, etc
Yael Valek
01:36:02
If anyone is interested, we can connect you
Luby Gao
01:36:44
Diagnosis of medical conditions like Autism or ADHD should be free with our health insurance, when you talk about expensive diagnosis, is it for the diagnosis of 2E?
EJ
01:37:26
is anyone using CalABLE to pay for the medical and education expenses of your child?
Julio
01:38:05
That was great and very helpful. Thanks!!!
Callie Turk
01:38:19
Thank you for coming, Julio!
EJ
01:40:32
Sorry, where can I find “The 5 Pillars of ASD Support Services—Optimizing Services for Success”?
Callie Turk
01:41:17
Hi EJ - we met a group in the East Bay that puts on that presentation. We’re considering inviting them to present to our group this summer or the fall. Would you be interested in that?
Yael Valek
01:42:15
And we can connect people to that parent support group if they’d like
Abby Kirigin
01:42:18
Not all neuropsychs are created equal! I have a list of some highly recommended evaluators, you can email me at abigail.kirigin@gmail.com
Callie Turk
01:42:21
@Kristina, we loved our neuropsych evaluator at CHC - Dr. Vivien Keil. Aileen Mosig also evaluates for 2e and specializes in 2e. https://www.kodawise.com/about
J H
01:42:39
what was the name of the 2e high school Melinda Hayes mentioned is in San Francisco
Callie Turk
01:42:44
@Abby, maybe a good blog post? What to look for in a 2e evaluator?
EJ
01:42:57
@Callie, I was hoping that there is a recording or blog to read :) I’m not sure how many people in REEL would benefit from it
Yael Valek
01:43:15
@EJ they run a parent support group around those topics
Julio
01:43:37
Our 2e son was diagnosed at Summit Center and they were very thorough
Abby Kirigin
01:43:43
@callie yes that could be really good
Callie Turk
01:44:21
@ JH - I’m trying to find that now! I know she mentioned a school in SF that she thinks is good for 2es but it isn’t a 2e school. I know someone who attended there for a couple of years if you would like to talk to someone who went there.
J H
01:45:57
callie that would be great. I googled but couldn't find it
Julio
01:46:25
Sure
Sharon Barkan
01:46:50
Aileen Mosig PsyD is great!
Julio
01:46:52
Yeah just email , my wife and my email is avantiandjulio@gmail.com
J H
01:47:53
I think you have to have pretty serious deficits to qualify for public funds
Yael Valek
01:48:04
If you would like to go more in depth and get specific resources, please contact Parent Resource Advisors
Sharon Barkan
01:48:06
There are free assessment in places like UCSF but the wait for a turn can be .... discouraging.
Luby Gao
01:48:19
Thank you, this is very helpful!
swapnilbw
01:48:29
Thamk
swapnilbw
01:48:35
Thank you very much
Carmen
01:48:38
carmenoshea@gmail.com,
Carmen
01:48:44
pra4parents@gmail.com
Lauren Meltzer
01:48:52
laurenmeltzer@yahoo.com