Eliminating Chronic Back and Body Pain - Free August Lecture Series - Shared screen with speaker view
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Learn more by visiting PPDAssociation.org
Agenda for tonight’s meeting: Jessica Shahinian, the Executive Director of the Psychophysiologic Disorders Association, will discuss her recovery story, recovery tips you can begin utilizing tonight, and the resources the PPDA offers to patients and practitioners.
Hi Dr. Clarke!
hello, how do I turn on the sound?
Hi, I had to enable my own microphone in order to hear you all. now its good!
care to comment on this? https://www.theatlantic.com/health/archive/2020/08/long-haulers-covid-19-recognition-support-groups-symptoms/615382/
I SO relate to what Jessica is saying.
Looks like an interesting article, Tony. I bookmarked it so I can read it with focus. And yeah, Jessica...I can relate!
I've had that too- where a side effect from a medication lasts for years.
Tried it all
Oh yes.....years of trying all sorts of stuff...until, Sarno. ;)
Yes, I've tried many, many things. In pain for over 35 years :-(
I tried everything possible for 13 years to heal from CFS before getting well with Sarno’s work.
same Theresa, Sarno's method (& seeing a doctor that trained under him) was the only thing that had any substantial impact on my pain after four years of trying everything
yes....everything....weekly for 2 years. Even bilateral lumbar injections... after that I began searching and found Dr David Hanscom's backincontrol.com...that redirected my path...
Very cool, Kathleen! I saw Howard Shubiner… I was a hard core case and needed medical validation. lol
I'm not sure where I'm stuck... I found Sarno almost 2 years ago. Have gotten SOME relief, but I have many, many symptoms like Jessica had. I journaled almost daily for 1.5 years. Still struggling a lot, especially with migraines and GI issues.
Debbie Roes, there is healing....you can be free. Jessica speaks truth!
yes, seeing a doctor was really integral to my belief too
Thank you, @Theresa. I'm open to learning new things to try.
Many up to date, science-based resources chosen by experts at ppdassociation.org/resources
Debbie, you are so welcome. Therapy has been profoundly helpful to me. I had a lot of trauma as a child and that played into my chronic pain A LOT.
i second therapy! it was so helpful for me too understand what was really at play in my personality as well that was contributing to my pain
I've had a lot of therapy, but mostly when I was much younger (depression and eating disorders in my teens and twenties). I'm open to more therapy now, but I don't have a whole lot of money for it.
Dr. Clarke - I met you in Sedona AZ at the film festival where Mike Gallinsky
'sAll the Rage was played. I love seeing your work. :)
I remember, Theresa. Great audiences for those screenings. Michael is brilliant.
Debbie, I hear you. If it wasn't for insurance, I wouldn't have got the therapy I needed.
Theresa, Dr. Shubiner also played a big role in my recovery! So did mind-body coaching, which also address stressors. Debbie there’s so much you can do on your own, too!
Yes! Michael is brilliant! So grateful for connecting with awesome folks like you!
The app Curable was developed by numerous experts. Almost like having a therapist in your smartphone.
As a physician I was introduced to Sarno’s work in around 2012 by a patient whose chronic pain resolved after reading Scott Brady’s book, based on Dr. Sarno’s work. Since then asa pain management physician I have had numerous patients have their pain resolve or reduce with reading Sarno’s work or Georgie Oldfield’s book or through psychotherapy. Stress is a huge contributor to chronic pain. The PPDA course is worth taking.
No she's making perfect sense
Synchronicity! I just downloaded Curable on my phone yesterday.
The lockdown gave me time to research...i needed to know the science and then found Dr John Stracks. Great results! Why don't doctors consider this? every treatment is structurally oriented.
As a former dancer whose first experience with PPD was an injury that prevented me from dancing for 17 years, I appreciate Jessica sharing her experience.
Rebecca, Dr. Schubiner rocks. :)
Physicians often do think of this but don’t know how to help.
@David Yes- they know it's somehow related but sometimes assume that means the pain isn't real.
I'm trying to view All the Rage...I can only find the trailer. I do meditation, expressive writing, sessions with Dr Stracks
This is an outstanding resource!
Linda, reach out to Michael Galinksy on FB. (The producer of All the Rage.) He can help you access the film.
Finding the story behind the pain is very helpful. Eg what was going on in your life before the pain came on?
there are not a lot of practitioners. I could do a zoom connection but I’d really like to find local doctor and therapist.
What about Covid-19 “long-hauler” syndrome?
Is the goal ro alleviate patient's pain or to learn to accept or mindfully detach from the pain?
I am sure there are lots of practitioners that are not listed on the site.
Charles, speaking from experience - this is about making the pain END. Not alleviate. Not detach from it. END.
Recommended Curable to a patient recently. Looking forward to feedback for her soon.
curable is amazing!
Must attend to family dinner guests. Great job Jessica! Best wishes to all.
can asthma symptoms be a PPD symptom? dr Schubiner diagnosed me with TMS, and I have many symptoms. But I also have asthma - can that be a mind body symptom?
Charles: Sometimes the pain just disappears when reading the book or having a discussion. I had one lose her pain just reading a website on PPD. Sometimes pain drops in stages. Sometimes another pain replaces the presenting one.
Great website and course. Practitioner page needs to be expanded.
Good point; most chronic diseases benefit from “stress” reduction
QUESTION: What do you think of the concept of the symptoms being a brain injury / limbic system impairment? This is the philosophy of DNRS (the Dynamic Neural Retraining System). After 1.5 years of not getting better with my TMS work, I took that course in October and am doing their program. But it feels like it contradicts with Sarno and other TMS experts. I'm not sure if I should keep trying to do BOTH.
I often experience most of my pain symptoms on the right side of the my body only. From severe pain in one area to even minor skin rashes, etc. I've heard some others say they're symptoms are mainly on side of their body too. What could be the significance of this?
Do you use physiologic pain as a synonym for TMS or Mind-Body Syndrome? it’s tricky because different doctors use different language for the same phenomenon.
This is because everyone’s genetics, epigenetic, and history are unique to them
Examples of the modalities?
"There's no pain substance" that's so helpful to understand, thanks Jessica.
Question: I often experience most of my pain symptoms on the right side of the my body only. From severe pain in one area to even minor skin rashes, etc. I've heard some others say they're symptoms are mainly on side of their body too. What could be the significance of this?
your site is a fantastic resource...thank you!
As Dr. Clarke points out, “pain is a decision the brain makes, to which I would add, “and the brain can change its mind”
My symptoms fluctuate and migrate but always from hips down to my toes. my upper body is never painful...except I've had severe dry eye. can that be PPD?
Dr. Schubiner also says neuro-pathway pain a lot.
Question for Jessica: Question: I often experience most of my pain symptoms on the right side of the my body only. From severe pain in one area to even minor skin rashes, etc. I've heard some others say they're symptoms are mainly on side of their body too. What could be the significance of this?
Jessica, Thank you so much for sharing your extraordinary story and website. I’m so happy to learn of these resources!
What about Arthritis & pinched nerve? Does that fit with the mind/body syndrome?
QUESTION: Re: "neural pathway changes"... That's basically what DNRS says, too, but their program is so different from most of what I've seen for TMS (PPD) programs. I was focused on feeling my feelings for 1.5 years and then I did DNRS and it's all about "staying in the positive" while "retraining the brain." This feels contradictory. Does Jessica or anyone else have anything to say about DNRS?
apologies. My internet has been unstable for a few minutes . I’l contribute later.
Fluctuate, migrate, move around -- we all experience that. That is not of real interest to me, at least. It is how do we make it stop is the real issue.
I had the same thing....I have stenosis...but the symptoms are never comsistent.
I’m currently tapering off benzodiazapine so I am in a chronic state of withdrawal which is 24/7 fight or flight. I have PAWS - prolonged acute withdrawal. The chronic fight or flight then results in numerous stress related health conditions. after running across Sarno & TMS, etc., I have greatly reduced the health issues like POTS, GERD, food & environment intolerances, pelvic floor pain, neck pain, rashes, etc. But I still have anxiety & fatigue. Is benzo withdrawal “real” or is it TMS. I have been unable to get a consensus on this from TMS doctors. I am hoping to find research on this issue, like brain imaging, that shows changes in the brain when taking benzos as well as brain changes during withdrawal. Some people suffer horribly for years after total withdrawal.
I've often heard that if the pain migrates, it's a sign that we're getting well (symptom imperative). But that's how my pain has ALWAYS been. I've had multiple symptoms for years and which symptoms are the worst changes all the time. So it makes me angry when I hear that my migrating and up and down symptoms are a "good sign." I need to know what to do to get rid of the symptoms, not hear that my symptoms are a good sign...
I have seen with my work over the years with chronic pain patients that stress absolutely intensities pain. It is particularly seen in my work with biofeedback and the physiological relation of stress, pain and fear. The challenge is always that pain more than anything else is a subjective matter or one person's agony can be another person's annoyance.
Thank you for those examples and explanation.
Dr. Bowler, Delighted to hear from another TMS doc! Thank you for your work!
The link looks like it's just free for part one of three. Is that right?
Another great meeting Joe! Thanks Jessica for sharing your story and the work you do! Thank you too Dr. Bowler!
Thank you! This is a fantastic resource!
wow thank you for the free course!
thank you so much!
Thanks Jessica for the opportunity to take the introductory course, I've been meaning to get around to doing that!
Thank you!!! This was so great!!!
and thank you for the story and the hope!
I am personally not convinced yet
Thank you for what you are doing! 😻
What a wonderful offering! Thank you so much.
Thank you! looking forward to next time too!
Thank you so much for doing this.
In the UK TMS, MBS or PPD is called stress-related or stress-induced illness. Patients identify with that term
Thank you for the wonderful presentation and free course, Jessica! Thanks for bringing us together Joe!
will be back!!
is the course free or not. it’s not clear on the webpage. thanks