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The PAE Attention Framework: Understanding the Ingredients for Successful Stakeholder Engagement - Shared screen with speaker view
Connor Bailey
33:48
This webinar is being recorded. We will post the pdf slides, a Plain Language summary, and a recording of the webinar on ncapps.acl.gov within two weeks.Today’s presentation can be accessed at: https://www.hsri.org/files/uploads/publications/NCAPPS_StakeholderEngagement_200615_508.pdfThis webinar will be captioned in English and Spanish. To view the Spanish captioning, please use this link: https://www.streamtext.net/player?event=HSRI-SPANISHEl seminario de web estará subtitulado en vivo en Inglés y Español. Para tener acceso a los subtítulos en Español, utilice este enlace: https://www.streamtext.net/player?event=HSRI-SPANISHAll webinar attendees have been muted. Please use the chat to communicate with the webinar organizers, presenters, and other webinar participants.There will be a brief real-time evaluation at the end of the webinar. If you have suggestions on how we might improve NCAPPS webinars, or if you have ideas or requests for future webinar topics, please send us a note at ncapps@hsri.org.
Matt Porubcansky
34:21
Poll not available for people joining via web instead of Zoom app, I think
Connor Bailey
36:00
This webinar is being recorded. We will post the pdf slides, a Plain Language summary, and a recording of the webinar on ncapps.acl.gov within two weeks.Today’s presentation can be accessed at: https://www.hsri.org/files/uploads/publications/NCAPPS_StakeholderEngagement_200615_508.pdfThis webinar will be captioned in English and Spanish. To view the Spanish captioning, please use this link: https://www.streamtext.net/player?event=HSRI-SPANISHEl seminario de web estará subtitulado en vivo en Inglés y Español. Para tener acceso a los subtítulos en Español, utilice este enlace: https://www.streamtext.net/player?event=HSRI-SPANISHAll webinar attendees have been muted. Please use the chat to communicate with the webinar organizers, presenters, and other webinar participants.There will be a brief real-time evaluation at the end of the webinar. If you have suggestions on how we might improve NCAPPS webinars, or if you have ideas or requests for future webinar topics, please send us a note at ncapps@hsri.org.
Bevin Croft
47:56
Today’s presentation can be accessed at: https://www.hsri.org/files/uploads/publications/NCAPPS_StakeholderEngagement_200615_508.pdf
Ramu Iyer
51:52
Gallup polls reveal declining workforce engagement b/c top management regard profits over purpose. In Supported Employment Agency for persons with disabilities there is greater focus on Billing & Binders. Stakeholder engagement is in the back burner which erodes system change & the mission of "Transforming Lives"
Ramu Iyer
55:22
This is one of many reasons why unemployment rate for Americans with disabilities is above 70%. We don't "see a rising tide of "Stakeholder Engagement" lifting all the ships". That said Covid19 crisis presents an opportunity to cause a visible change in priorities for changemakers.
Bevin Croft
56:58
Agree @Ramu - we are doing so many things differently because of the pandemic, and there may be a window of opportunity to reshape/rethink our methods for and prioritization of engagement.
Bevin Croft
01:00:14
If you have a question that you'd like considered for the Q and A later on, or if you'd like to make a comment, please use chat. If you'd like everyone to see your comment/question, be sure to select "All panelists and attendees" in the "To" line.
Miso Kwak
01:03:41
if there is any resources you are sharing via chat, please be sure to check all panelist sand attendees so everyone can see your message
Lauren Agoratus
01:04:17
Check out Family Voices framework on family engagement/children with special healthcare needs at https://familyvoices.org/wp-content/uploads/2018/06/Assessment-of-Family-Engagement-Key-Criteria_2.2018.pdf
Lauren Agoratus
01:04:34
And toolkit https://familyvoices.org/familyengagementtoolkit/
Connor Bailey
01:05:08
This webinar is being recorded. We will post the pdf slides, a Plain Language summary, and a recording of the webinar on ncapps.acl.gov within two weeks.Today’s presentation can be accessed at: https://www.hsri.org/files/uploads/publications/NCAPPS_StakeholderEngagement_200615_508.pdfThis webinar will be captioned in English and Spanish. To view the Spanish captioning, please use this link: https://www.streamtext.net/player?event=HSRI-SPANISHEl seminario de web estará subtitulado en vivo en Inglés y Español. Para tener acceso a los subtítulos en Español, utilice este enlace: https://www.streamtext.net/player?event=HSRI-SPANISHAll webinar attendees have been muted. Please use the chat to communicate with the webinar organizers, presenters, and other webinar participants.There will be a brief real-time evaluation at the end of the webinar. If you have suggestions on how we might improve NCAPPS webinars, or if you have ideas or requests for future webinar topics, please send us a note at ncapps@hsri.org.
Alixe Bonardi
01:05:21
Question for panelists and attendees. What do people think about setting up optional "pre-meetings" to help people think through and get ready for a discussion? What are the pros and cons?
Susan Ellis
01:14:51
As long as the intention of the pre meetings are to make the decision-making meeting more accessible (not less) and agree on strategies most effective for the Individual stakeholders involved , a pre meeting can be useful and help the decision making meeting more successful.
Lauren Agoratus
01:17:39
4 domains of family engagement: representation, transparency, impact, and commitment–https://familyvoices.org/wp-content/uploads/2018/10/FamilyVoices_LPFCH_assessing_family_engagement_April2018.pdf
NICOLE LEBLANC
01:21:13
Change is about 'Getting Out of Your Comfort zone and Getting Comfortable being Uncomfortablehttp://www.gmsavt.org/get-on-board-and-make-a-difference/good tool to use for boards and commiteeshttp://www.gmsavt.org/wp-content/uploads/2010/12/Getting-Your-Message-Across-Communicating-With-People-With-Intellectual-Disabilities.pdf
NICOLE LEBLANC
01:28:11
Small groups are best, Breaking up in small groups when needed. Having someone as a Jargon buster, Time Keeper, is good, Avoid sending out meeting notices last minute
NICOLE LEBLANC
01:28:47
Embracing Diveristy and Intersectionality is also good.
Ramu Iyer
01:29:43
Attention has become a premium in a Twitter world. The PAE framework is a great best practice
Linda Starnes
01:32:11
For those being asked to provide their expertise for short-term, and more important, long-term engagement … what about compensation for their lived experiences being shared? This is our personal time, our personal lives being shared, and our expertise — and should be valued as such.
NICOLE LEBLANC
01:33:03
IT Makes People with disabilities feel like they belong , Inclusion is a BIrthright
Wendy Corry
01:34:47
I agree with Linda Starnes. In NM, the state agency often pays self-advocates and family members for their engagement at $15.00 per hour.
Erin McGaffigan
01:36:30
Yes! Stipends or payment are absolutely an "approach factor"
Erin McGaffigan
01:36:55
It demonstrates value. We are all experts and all our time is valued
Brenda Cossé
01:38:03
Concur. With training and supports/accommodations, Stakeholders with Intellectual Disabilities (and Developmental Disabilities) can learn to Engagement via webinars, video conferencing, teleconferencing, and the like. Thx BLCossé, LaDDC Parent
Alixe Bonardi
01:39:18
Good question re. Zoom meetings. The successful meeting facilitation I have seen takes a few steps: 1. if more than about 5 people, the facilitator should plan to call on people for brief introductions. That way, people have the experience of speaking. And then let people know they will be called on to share their meetings 2. Request that people keep their cameras on. For people who are used to visually "reading the room" in person, it is helpful to be able to see people's faces. 3. Directly ask people what they think using polls, or just the simple: "raise your hand" feature in chat. Finally, if you are going to ask people to use the zoom or other on-line meeting platform to 'vote' or 'put their hand up', make sure to build in time to practice that at the beginning of the meeting, before you are asking people to answer your question.
Carol S Ranck
01:40:07
re.: "stipends/payments - If a state has limited resources, the use of a public/private partnership w/a "funder" other than the state may be possible. For example, a private foundation that has "grants"/funds available to use for "inclusion", etc. Thinking "outside the box", being innovative is very useful.
Alixe Bonardi
01:40:40
Yes, there are lots of resources. Here's a short virtual meeting accessibility resource: https://ncapps.acl.gov/docs/SupportingMeetingAccessibility_NCAPPS_200519.pdf
Wendy Corry
01:42:41
NM has several People First chapters and the Albuquerque group has decided to meet weekly on ZOOM because they miss their friends . we have about 25 consistent self advocates at every meeting and we share how to make masks, share our fears and resources about COVID and last week discussed racism and how people feel about the protests. Very powerful. Also do fun activities like Bingo, Mad Libs, arts and crafts show and tell, ect
Bevin Croft
01:43:09
Thanks for emphasizing representativeness, Keith! And thank you for raising issues of historical traumas. This is so critical for true inclusion.
Carol S Ranck
01:43:09
SO glad to hear Keith's point re.: value of understanding "historical" background!!! So often historical perspective has been ignored in policy development.
Linda Starnes
01:44:29
Agreed Carol Ranck, but I also hope states move forward in that when the want lived experience engagement for projects/initiatives, etc., that they budget for it whenever possible. It is more and more desired and expected to have lived experience voices, so it needs to be thought of in a line-item way by our local and state organizations and agencies.
NICOLE LEBLANC
01:45:05
Amen Stipends are a must if they are not there for job purposes
Carol S Ranck
01:45:15
Agree - that is preferred.
NICOLE LEBLANC
01:45:42
It puts us on = footing with those doing advocacy, policy full time
Ramu Iyer
01:46:09
The PAE Attention Framework can become an intangible "currency" that co-exists with budget allocation ($$$ by Congress) to achieve realistic outcomes & ensure equity and safeguard human rights.
Alixe Bonardi
01:46:28
Thank you for pointing out opportunities for zoom, social meetings. These meetings that are more socially oriented are important ways to connect, have fun, and are also creating practice so people are all set and ready to use the on-line forum for stakeholder engagement meetings.
Chris Oakes
01:47:24
Will comments & resources mentioned in Chat be included in the recorded version?
Miso Kwak
01:47:52
we will go through the chat and sort out the resources shared
Chris Oakes
01:48:25
Thank You
Kelly Lang
01:49:24
Great discussion. Thank you!
Connor Bailey
01:49:25
Today's slides can be accessed and downloaded today at this link: https://www.hsri.org/files/uploads/publications/NCAPPS_StakeholderEngagement_200615_508.pdf
Wendy Corry
01:51:14
"Official" engagement can often come from self advocate groups already meeting. For ex. In NM, our I/DD state program leadership will be meeting with our ZOOM People First group this week to discuss advocates thoughts on re-opening for COVID. Self-advocates are also a key component in ongoing discussions on how, when to re-open for people using waiver services
NICOLE LEBLANC
01:51:52
Use your states Partners in Policymaking or LeaderSHIP Series PUT on m=bY DD Council , uceeds, and Other groups annually AS a way to build strong leaders to advance our movement for TRUE INCLUSION, Full Civil Rights for all People with Disabilities
NICOLE LEBLANC
01:55:44
ASAN is using the SARTAC project as a way to make lots of Plain English guides on many subject areas that are EASY READ.
NICOLE LEBLANC
01:56:42
SARTAC during COVID19 has used this crisis as a way to support Self Advocates during this time IN UNDERSTANDING everything that's going on.
Saska
01:57:27
From UT, we have turned our asset map into an online engagement resource directory of sorts: https://dspd.utah.gov/find-a-community-resource/
Chris Oakes
01:58:00
Are there ways or tools to review existing disability resource databases to ensure quality & relevance?
Linda Starnes
01:59:23
Thank you to all the panelists — nice to hear diverse voices :)
Lisa Boerum
02:01:01
THANK YOU SO MUCH!